Thanks for the update Miranda! Nice to see you're in good spirits. Take good care.
From the July 4th
Instagram post by Miranda Allen:
Holy smokes, making this was so exhausting! I’m so happy I finally did it.
I’m gonna go take a nap while you read this description 😆
My condition is called ME/CFS.
It is a complex, chronic, fluctuating, neurological condition which affects the autonomic nervous system and cellular ATP energy output…. What?!
I’ll break it down:
COMPLEX = a condition affecting multiple systems in the body.
CHRONIC = it’s gonna last a long time.
FLUCTUATING = sometimes it is better, sometimes it is worse, sometimes it’s a symptom severity mix and match.
What I can do one day, I may not be able to do another.
NEUROLOGICAL = affecting the brain and nerves.
AUTONOMIC NERVOUS SYSTEM = the part of your nervous system (brain & nerves) that controls subconscious body functions, IE: all the stuff you don’t have to think about like heart rate, breathing, digestion, sending blood to in-use muscles, dilating pupils, etc.
CELLULAR ATP ENERGY OUTPUT = remember the mitochondria? Powerhouse of the cell.
In short, inside our cells mitochondria turn oxygen & nutrients into a chemical called ATP, which your body uses as energy.
In ME/CFS patients this process is messed up. Our mitochondria are in rough shape and produce HALF the energy of a healthy person.
Our bodies literally cannot make enough energy to function.
Hence, a complex, chronic, fluctuating, neurological condition which affects the autonomic nervous system and cellular ATP energy output. 😊
Thanks for watching and reading.
Please give this reel a “like” if you’ve come this far because I dunno where I’m going with this all, but I imagine likes will help. 😄
From the July 23rd
Instagram post by Miranda Allen:
Wheelchair jokes!
Here’s 90 seconds of a ten minute set I’m working on about things I’ve noticed &/or learned since becoming an ambulatory wheelchair user.
From the July 30th Instagram post by Miranda Allen:
